By Ben Williams, IVI 2023 Summer Intern and Student at Davidson College Over the summer, my parents helped my grandparents move into an assisted living facility. It was an intense process that involved taking time off from work, packing up my grandparents' home of 15 years, navigating their finances, and worrying about their future. [...]
Tiffany Westrich-Robertson, CEO at AiArthritis During a recent interview, Tiffany Westrich-Robertson, the CEO of AiArthritis, a member organization of IVI, discusses the challenges the arthritis community faces regarding access to therapies and equity issues in patient advocacy. She emphasized educating patients on Health Technology Assessment (HTA) and its impact on their health. Based on [...]
By Madoka Kumamaru, IVI Summer Intern and Graduate Student at the Columbia School of Public Health Five years ago, when I was a teenager with a chronic health condition returning to the United States for university, I encountered several challenges while navigating the healthcare system. Although some of my peers had coverage until age [...]
Tim Lai is a graduate student at the Auburn University Harrison College of Pharmacy's Department of Health Outcomes Research and Policy, and the first recipient of the newly created fellowship for graduate students by the college and the Innovation and Value Initiative (IVI). Tim, thank you for taking the time to speak with us. [...]
Richard Seiden, retired attorney and patient advocate, is a member of the IVI Patient Advisory Council, where he provides valuable insight into IVI's work. In a recent conversation, Richard shared how psoriatic arthritis has impacted his life and why he works with IVI to center the patient within the health technology assessment process. [...]
In 2021, the Innovation and Value Initiative (IVI) and the Arthritis Foundation published a report, First Hand Perspectives in Rheumatoid Arthritis, describing how researchers often miss the priorities and needs of people living with rheumatoid arthritis (RA). Each of the patient-advocate co-authors reiterated that the costs related to RA reach far beyond direct medical [...]
By Jennifer Bright, MPA In 2021, the Innovation and Value Initiative (IVI) first hosted a webinar series on the implications of health technology assessment (HTA) for health equity, drawing attention to the limitations of data and methods, and the inability to understand the impact of HTA for patients and families already experiencing disparities. Since [...]
IVI sits down with our Chief Development Officer, Melanie Ridley, to discuss her cancer journey. Here is her story.
Earlier this summer, we had a chance to speak with one of IVI's new members, Ms. Nelly Ganesan. Currently, she serves as the Executive Director of External Affairs and Health Equity at Morgan Health, a division with JPMorgan Chase. Nelly is a new member of our Board of Directors and is serving on IVI's [...]
By Maggie Jalowsky, Sick Cells and Jennifer Bright, Innovation and Value Initiative Patient Engagement Gains Traction Patient engagement in healthcare research is having a moment. Conferences, public policies, and thought leaders have finally begun to echo what so many of us have said for decades – patients, with all their rich complexities, must be [...]
